Monday, 25 November 2024

Baby girl born with massive adult-sized TONGUE smiles for first time after life-changing surgery

Little Paisley Morrison-Johnson's rare condition caused her tongue to grow more than twice the size of her mouth - and continue to grow back and hang out of her mouth when cut away


 
Caters Paisley Morrison-Johnson, from Aberdeen in South Dakota, USA, with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23,
Strangers would often comment on the size of little Paisley's huge tongue

A baby girl born with a massive ADULT-SIZED tongue has smiled for the first time after life-changing surgery.

Little Paisley Morrison-Johnson was born with such a huge organ in her mouth that she needed breathing apparatus for the first week of her life to stop her from choking to death.

Her rare condition caused the little girl's tongue to grow more than twice the size of her mouth.

Even after surgery to slice parts of it away, it continued to grow back and still hung out of her mouth.

She was diagnosed as having been born with Beckwith Wiedemann Syndrome (BWS) – an overgrowth disorder that affects one in every 11,000 births worldwide.

Caters News Agency
Little Paisley can now smile like any normal baby

The size of the organ even shocked doctors, who said it was one of the largest tongues they had ever seen.

Paisley had to be fed via by a gastronomy-tube until she was six-months-old - because she struggled to eat and wasn't receiving the vital nutrients needed to keep her alive.

Caters Paisley Morrison-Johnson, from Aberdeen in South Dakota, USA, with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23
Little Paisley with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23

Concerned parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23, from Aberdeen in South Dakota, USA, hoped their daughter's mouth would grow to accommodate her overgrown tongue - but that never happened.

Eventually Paisley had her second tongue reduction and has smiled for the first time after having a total of more than six inches of muscle removed.

Caters News Agency
Paisley's parents hoped that her mouth would grow to contain the tongue - but it didn't

Paisley, who is 16-months-old, is now enunciating the sounds that will allow her to speak her first words.

Mum-of-two Madison, a pre-medical student, said: "Her tongue filled up her whole mouth, it was very thick and protruding out of her mouth.

"It looked she had an adult's size tongue inside the mouth of a baby.

Caters Paisley Morrison-Johnson, from Aberdeen in South Dakota, USA, with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23,
Paisley had to be assisted to breathe in the first week of her life - and to eat for six months

"Her tongue was constantly sticking out, she was always chewing on her tongue because it took up so much room in her mouth.

"When she was born, it was so enlarged that doctors worried it was going to affect her airways and cause her to suffocate."

Paisley was incubated on a ventilator for her first three days and then given nasal oxygen – but by the time she was a week old she was breathing on her own.

Caters News Agency
Strangers would often comment on the size of Paisley's tongue

Her mum added: "Doctors told us she had one of the largest tongues they had ever seen and that the sooner she had reduction surgery the better.

"But after her first surgery it looked like her tongue had grown back to its original size and was really bothering us.

"During her second reduction surgery a massive amount of her tongue was removed and thankfully now it goes completely into her mouth.

Caters Paisley Morrison-Johnson, from Aberdeen in South Dakota, USA, with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23,
Paisley has now undergone life-changing surgery

"Since recovering she smiled for the very first time, I couldn't believe it and was shocked by how beautiful my little girl looked.

"Being able to see her smile is absolutely huge for us and now she's not even having difficulties eating which is a massive relief.

"She's like a completely new baby - her facial features look different, she smiles a lot and she has even getting close to saying her first words.

"She couldn't even make the sounds to say words like 'mama' and 'dada' before because of the size of her tongue so this feels like a massive achievement."

Caters Paisley Morrison-Johnson, from Aberdeen in South Dakota, USA, with parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23,
Little Paisley's tongue was the size of an adult's from birth

Before having her reduction surgeries, Madison noticed that people would stare at her daughter because of her enlarged tongue – which is one of the main symptoms of BWS and medically known as macroglossia.

Madison said: "Because her tongue protruded out of her mouth and constantly stuck out it always looked like she was making silly faces.

"Quite often, strangers would stare at her and some would make comments.

"They would always ask me why she looked so different and why she had such a huge tongue."

Doctors hope that Paisley won't need further tongue reduction surgery and are now monitoring for other risks associated to BWS.

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